The organizational dimension in rare and complex diseases care management: an application of RarERN Path© methodology in ataxias, dystonia and phenylketonuria

Cannizzo, Sara; Quoidbach, Vinciane; Trieste, Leopoldo; Benson, Monika; Federico, Antonio; Filla, Alessandro; Gilroy, Bernadette Sheehan; Giunti, Paola; Graessner, Holm; Greenfield, Julie; Hagedorn, Tobias; Hermida, Alvaro; Hunt, Barry; Macdonald, Anita; Morgante, Francesca; Oertel, Wolfgang; Pastores, Gregory; Pauly, Martje G.; Reinhard, Carola; Relja, Maja; Treacy, Eileen; Van Spronsen, Francjan; Vallortigara, Julie; Turchetti, Giuseppe

The organizational dimension in rare and complex diseases care management: an application of RarERN Path© methodology in ataxias, dystonia and phenylketonuria

Autor(en):

Cannizzo, Sara; Quoidbach, Vinciane; Trieste, Leopoldo; Benson, Monika; Federico, Antonio; Filla, Alessandro; Gilroy, Bernadette Sheehan; Giunti, Paola; Graessner, Holm; Greenfield, Julie; Hagedorn, Tobias; Hermida, Alvaro; Hunt, Barry; Macdonald, Anita; Morgante, Francesca; Oertel, Wolfgang; Pastores, Gregory; Pauly, Martje G.; Reinhard, Carola; Relja, Maja; Treacy, Eileen; Van Spronsen, Francjan; Vallortigara, Julie; Turchetti, Giuseppe

Tübinger Autor(en):

Graessner, Holm
Reinhard, Carola

Erschienen in:

Bmc Health Services Research (2025), Bd. 25 (1), Article 799

Verlagsangabe:

London : Bmc

Sprache:

Englisch

Referenz zum Volltext:

http://dx.doi.org/10.1186/s12913-025-12784-9

ISSN:

1472-6963