The organizational dimension in rare and complex diseases care management: an application of RarERN Path© methodology in ataxias, dystonia and phenylketonuria

Cannizzo, Sara; Quoidbach, Vinciane; Trieste, Leopoldo; Benson, Monika; Federico, Antonio; Filla, Alessandro; Gilroy, Bernadette Sheehan; Giunti, Paola; Graessner, Holm; Greenfield, Julie; Hagedorn, Tobias; Hermida, Alvaro; Hunt, Barry; Macdonald, Anita; Morgante, Francesca; Oertel, Wolfgang; Pastores, Gregory; Pauly, Martje G.; Reinhard, Carola; Relja, Maja; Treacy, Eileen; Van Spronsen, Francjan; Vallortigara, Julie; Turchetti, Giuseppe

dc.contributor.author	Graessner, Holm
dc.contributor.author	Reinhard, Carola
dc.date.accessioned	2025-09-08T08:23:53Z
dc.date.available	2025-09-08T08:23:53Z
dc.date.issued	2025
dc.identifier.issn	1472-6963
dc.identifier.uri	http://hdl.handle.net/10900/170055
dc.language.iso	en	de_DE
dc.publisher	London : Bmc	de_DE
dc.relation.uri	http://dx.doi.org/10.1186/s12913-025-12784-9	de_DE
dc.subject.ddc	610	de_DE
dc.title	The organizational dimension in rare and complex diseases care management: an application of RarERN Path© methodology in ataxias, dystonia and phenylketonuria	de_DE
dc.type	Article	de_DE
utue.quellen.id	20250630000000_00252
utue.personen.roh	Cannizzo, Sara
utue.personen.roh	Quoidbach, Vinciane
utue.personen.roh	Trieste, Leopoldo
utue.personen.roh	Benson, Monika
utue.personen.roh	Federico, Antonio
utue.personen.roh	Filla, Alessandro
utue.personen.roh	Gilroy, Bernadette Sheehan
utue.personen.roh	Giunti, Paola
utue.personen.roh	Graessner, Holm
utue.personen.roh	Greenfield, Julie
utue.personen.roh	Hagedorn, Tobias
utue.personen.roh	Hermida, Alvaro
utue.personen.roh	Hunt, Barry
utue.personen.roh	Macdonald, Anita
utue.personen.roh	Morgante, Francesca
utue.personen.roh	Oertel, Wolfgang
utue.personen.roh	Pastores, Gregory
utue.personen.roh	Pauly, Martje G.
utue.personen.roh	Reinhard, Carola
utue.personen.roh	Relja, Maja
utue.personen.roh	Treacy, Eileen
utue.personen.roh	Van Spronsen, Francjan
utue.personen.roh	Vallortigara, Julie
utue.personen.roh	Turchetti, Giuseppe
dcterms.isPartOf.ZSTitelID	Bmc Health Services Research	de_DE
dcterms.isPartOf.ZS-Issue	Article 799	de_DE
dcterms.isPartOf.ZS-Volume	25 (1)	de_DE
utue.fakultaet	04 Medizinische Fakultät	de_DE